Stephanie O. Joy, Esq.
Much needed Social Security Disability change for those with ALS - please pass it on.
For whatever reason, not much fan-fare issued from the media to spread the important word on a new law to better support those with ALS, and their families. Had I realized that, I'd have posted this much sooner. But yes, President Trump passed the ALS Disability Insurance Access Act of 2019 which eliminates the required five-month SSDI waiting period (non-payable months for SSD disabled folks) for ALS applicants approved for benefits on or after July 23, 2020.
And, to further the usefulness of this financial benefit for those with ALS and their families, this month the SSA fulfilled a goal of creating an automated process for handling such cases in days, once the award has been made. "Previously, we had to prepare manual awards and send them to our Processing Centers for action—which took much more time. Now, we can help people with this debilitating disease in just a matter of days."